Heart, Meet Sleeve (Part III)

Thursday, November 15, 2007 | comments (9)
It's pretty much universally accepted that knowledge is power. But I'm here to tell you that's not always true. Knowledge can also leave you a quivering mass of gelatin on the hardwood of your dining room. And while jello is not completely devoid of nutritional worth (wait, maybe it is) "gelatinous" is indeed a pretty non-powerful state to be in. There's a very good reason I don't look up medical conditions on the Internet. I've learned that stewing over something in my imagination is much, much better than stewing over something in print on the screen in front of me. And what's even better than that is not stewing at all.

So maybe powerful isn't really the right word. But I understand what is meant by the expression. Knowledge allows you to take action. Otherwise, you're a sitting duck. And that's a bad thing to be.

I put the echocardiogram off for a little while. I considered not having it. Because even though, as I've said, I was sure things were fine, maybe I was just tad doubtful. The pounding I get from time to time. The recent chest pains. Probably stress. But still. Maybe I didn't want to know.

An echocardiogram is basically an ultrasound on the heart. The tech applies a slick gel on your chest and then rubs the cold end of what I believe is called a "transducer" — a sort of microphone-like device — all over you. It's all kind of kinky up until the point where you start hearing the loud, staticky-slushy beat of your heart coming from the machine next to you. It's an unsettling sound, your heart on an echocardiogram, healthy or not. I'm used to thinking of it as a thump, thump, not as a slosh-slish-slash-slush watery type of thing. But we're 78% water. So I guess I shouldn't be surprised.

Another thing that's unsettling is when the tech keeps pointing out that, "Yep there's your murmur alright and and what's up with that, anyway? Were you sickly as a kid?"

Well, not really, Ms. Tactful. But since you brought it up, I'm of course wondering what it is you know and why the hell you asked. Here, let me try one on you: Were you insensitive as an adult?

Test. Done. I went home.

My rheumatologist's office called at 7pm that evening to discuss the test. Not my Doc, but an intern. The caller ID said "Doc" and I was already interpreting the timing of the call as a bad sign before even picking it up. Good news can usually wait until the morning. Bad news, comes during dinner, in the middle of a great repeat of Scrubs. The intern talked about the results and used words like "aortic regurgitation" . . . blah, blah . . . "bicuspid valve" . . . blah, blah . . . "insufficiency" . . . blah, blah . . . "need to monitor this closely." She was going to refer me to a cardiologist and wanted me to go ahead and make an appointment soon. I scribbled what I could on the back of a piece of junk mail. I was trying to uncover the deeper meaning, here. It all seemed rather rational and cut and dry from the tone in her voice. But the meaning, woman. Come on, what are you trying to tell me?

So I did some fishing, trying to get her to gauge the seriousness of this thing she was referring to. But she just used some vague, equivocating language and said I should definitely get a cardiologist's input. I tried this one out: "I have a penchant for hypochondria, should I be concerned, you know, of dying anytime soon." Comfort me, dammit. Say something positive.

"Well, I'd say the fact that you're asymptotic is good."

What the fuck? Do you not understand the meaning of the word "hypochondria?"

She was not damning, but definitely not comforting. I didn't even know what "asymptotic" meant in this situation.

I hung up the phone, strangely calm. C was on the quiet car on an Acela back from Jersey, so I couldn't call her. And so I was standing there alone, letting it all sink in. And it didn't take long for my brain to draw the obvious conclusion of the conversation that had just transpired: I was going to die. Tonight.

Panic set in. I opened a Pale Ale. Then another. I called my dad. Because he can be rational under situations like this. And I needed rational. He picked up in Dallas. He was on his way to dinner. "Can I call you back?" he asked. I said yeah, but he could tell by the tone of my voice I didn't mean it. "What's wrong?" he said. There was some babbling and crap and finally I managed to utter the words, "Going . . . to . . . die." Then I clarified: "Sometime tonight, I think." Thankfully, my dad's business philosophy has always been to have several clients that are doctors. It's a good strategy, not just in business, but in life. Befriend doctors. It's a philosophy I've come to appreciate.

After about 10 minutes I got a call from my dad's Doc. By this point I was feeling the effects of downing that first beer. I'm not even sure, looking back, if I physically swallowed it. I think it just went straight down my throat to my stomach. My biggest question was: What the fuck is "regurgitation." Because I have a feeling it doesn't refer to the way I feel right now. He explained that it meant the valve wasn't closing all the way and blood was flowing back into the heart. He said there are varying degrees of it and he'd need to see the tests to know more. He said most of the time, the condition is just monitored. What they get concerned about is enlargement of the heart. Until that happens, the main strategy is to just wait and see. I might need to take action someday on it, but I might not. And there's no way of knowing when that could happen. The downside, is it most likely won't get any better, the upside is that it may not necessarily get a lot worse. The other upside was that it could be fixed if it needed to be, with a replacement valve. This made me feel a little better, though heart valve surgery has never been on my list of things to try in my life.

This past week I saw another doctor here in Baltimore. I call him "Doc Scales" because he liked making "The Scales Gesture" — you know, the one where you put both your hands out in front of you, palms facing the ceiling, and then shrug your shoulders. I asked him if there was any way of knowing whether or not surgery would be necessary. The response, not only to that question, but to just about all of them, was: "If you were to ask me will the valve last another year, I'd say: very probable. Another five years? Again, probably. Another ten? Scales Gesture. Another twenty or thirty? Scales Gesture." So I asked him if there was any argument to be made for a "preemptive" approach: replace that sucker now while I'm young and healthy. This, refreshingly, got a definitive "Absolutely not." Followed by head shaking. You want to wait as long as possible because the replacement valves don't last forever and chances are you'd need to replace it again in the future.

Okay, Doc Scales. I got it. Preemption is a bad idea.

I now know that the regurgitation is, in fact, "mild to moderate." There is no enlargement of the heart, which is good. And I got a glowing "A+" on the stress test. No irregularities, and it took me forever to get up to the desired 170-180 beats per minute, and by that point I was basically running on the treadmill. So the approach is as was expected: "Monitor it." Doc Scales prescribed blood pressure and cholesterol lowering medication, saying there was some evidence out there that it could help prolong the life of the valve, so I might try that. But I want to get a second opinion before I do. I'm already taking enough drugs for the elderly, I don't want to add two more unless it's really necessary.

And speaking of drugs for the elderly, the really good news in all of this, is that the Enbrel is working like a charm. I've been taking it, along with a smaller dose of daily anti-inflammatories, for a little over a month now and I'm feeling better than I've felt in probably a year. Mobility is good. I can actually do things like run up a flight of stairs or get into a car without wishing somebody would shoot me. The sciatica has subsided. Strength is back in my calf. The b-boy limp is gone (tragically). And I've gotten used to the injection thing. I put it in my leg, once a week. Easy.

So in the case of the AS, knowledge was good, I guess. But I'm still not sure if knowing about this heart thing is good or not. Sure now I can take some steps to "prolong" the life of the valve. But on the other hand, knowing about it is only going to lead to worry. Which leads to higher blood pressure and stress. Which is not good for said condition. So is that good? Is that powerful? Maybe with the swimming and the exercise and the eating relatively well I would have just lived a regular life not knowing about this thing and would have been fine. And maybe now I'll "think" myself into an early surgery, a premature date with a pig's valve.

Maybe. Scales Gesture.

One thing is for sure: I'm going to take steps to change the way I deal with stress. Now. Today.

And, yeah, I guess that's power.

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Comments

Thanks for sharing. Great writing. Hope you continue to feel well.

Posted by jamy on Nov 15, 2007 at 3:09:31 PM
sometimes...real life isnt like and episode of greys anatomy.. and everything isnt wrapped up neatly in an hour.. or a post...
and sometimes...thats a good thing...
but rrgh... id feel a LOT better with something more definitive than...huumm scales gesture...
and i bet YOU would too!!!
xoxo

Posted by suicide_blond on Nov 15, 2007 at 3:51:29 PM
Wow I love your writing....my son has the same condition you speak of... HE is 3 1/2. Just keep it monitored..all will be OK!
Theresa

Posted by Theresa on Nov 15, 2007 at 4:24:11 PM
Cheers to living a few more years!

Posted by James on Nov 15, 2007 at 4:30:34 PM
screw the worrying, party. have you seen olds?

Posted by j on Nov 15, 2007 at 7:33:42 PM
jamy: Thanks for listening. Me too!

sb: Indeed. I actually kind of liked the guy, but I wish he had had some stats or something besides the shrug.

Theresa: Thanks. I like your attitude. I think I'll take that philosophy as well.

James: A few? Man, you've got to aim higher.

j: 97s? Not recently. And I think partying is imminent . . .

Posted by rothko on Nov 15, 2007 at 10:27:19 PM
no, just olds.

Posted by j on Nov 16, 2007 at 4:25:06 PM
A big heart is better than a small heart.

Come on over for some bourbon or congnac. Anytime!

Posted by Laundro on Nov 19, 2007 at 9:53:41 AM
On a geological time scale, a few years really translates to roughly a century or two.

Posted by James on Nov 19, 2007 at 10:56:54 AM
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